Patient Advisory Committee

Patient Advisory Committee

Mission

The ESRD Network of New England Patient Advisory Committee (PAC) is committed to enhancing the quality of life for New England ESRD patients through education, communication and active representation.

The New England PAC is made up of dialysis patients, transplant patients and patients’ family members from the six New England states of Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island and Vermont. The members of the PAC are chosen for their leadership qualities and interest in promoting quality of care for their fellow patients. The PAC is the voice for all New England patients on dialysis –over 13,000 and for those patients who have had kidney transplants.  More information about the Network of New England PAC can be viewed by clicking here!

Committee Membership

A potential PAC member can be nominated by their dialysis and/or transplant provider.  Interested patient’s also have the ability to directly apply for membership.

In order to nominate a someone you can either print and return the Patient Advisory Committee Nomination Form.

Activities

The PAC meets face to face once a year in a New England location and communicates several times throughout the year on telephone conference calls. The meetings are completely supported by the ESRD Network of New England, which pays for all expenses including mileage reimbursement, lodging, meals, meeting space, meeting materials and meeting facilitator. The purpose of the meeting is to make decisions about which patient education projects to focus on and to advise the Network staff in its work with the New England renal community. The activities of the PAC include, but are not limited to:

  • Assist in the creation of educational material for patients.
  • Review material developed by the Network to make sure it is “patient-centered”.
  • Inform the Network of New England of patient concerns so the Network can provide education to ALL Network providers.
  • Suggest topic ideas for the Networks patient educational newsletter Kidney Chronicles.
  • Assist with the PAC booth at the Network Annual Meeting in October.
  • Provide advice or patient perspectives to assist with conflict resolutions.

  • Your New Life – A guide for patients and patients families with Chronic Kidney Disease (CKD) or End-Stage Renal Disease (ESRD). Your New Life is also available in Spanish.